|
Organization |
Address |
|
Fabry Support & Information Group |
108 NE 2nd Street, Ste. C
P.O. Box 510
Concordia, MO 64020-0510
Phone: 660-463-1355
Fax: 660-463-1356
Email: info@fabry.org
www.fabry.org |
|
Fabry Registry |
www.fabryregistry.com |
|
Gene Clinics |
Searchable, expert-authored, peer reviewed disease database
www.geneclinics.org |
|
International Center for Fabry Disease |
Department of Human Genetics
New York NY 10029
Phone: 212-659-6779
800-322-7963
Email: fabry.disease@mssm.edu
www.mssm.edu/genetics/fabry |
|
National Organization for Rare Disorders (NORD) |
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
Phone: 203-744-0100
Voice Mail: 800-999-NORD (6673)
Fax: 203-798-2291
Email: orphan@raredisease.org
www.rarediseases.org |
|
National Institute of Neurological Disorders and Stroke (NINDS) |
31 Center Drive
Bethesda MD 20892-2540
Phone: 301-496-5751
800-352-9424
www.ninds.nih.gov/ |
|
New England Fabry Support Group |
www.nefsg.org |
|
Office of Rare Diseases at NIH |
Focus on patients, information and support groups. Links to OMIM, PubMed and other resources
www.rarediseases.info.nih.gov/ |
|
CLIMB (Children Living with Inherited Metabolic Diseases) |
Climb Building
Crewe Intl CW2 6BG
Phone: +44- 87-0 7700 325
Email: info@climb.org.uk
www.CLIMB.org.uk |
