|
Organization |
Address |
|
Chicago Center for Jewish Genetic Disorders |
Ben Gurion Way
One South Franklin Street, Fourth Floor
Chicago, IL 60606
Phone: 312-357-4718
Fax: 312-855-3295
Email: jewishgeneticsctr@juf.org
www.jewishgeneticscenter.org |
|
Children's Gaucher Research Fund |
P.O. Box 2123
Granite Bay, CA 95746-2123
Phone: 916-797-3700
Fax: 916-797-3707
Email: research@childrensgaucher.org
www.childrensgaucher.org |
|
Genetic Alliance |
4301 Connecticut Avenue NW
Suite 404
Washington, DC 20008-2304
Phone: 202-966-5557
Fax: 202-966-8553
800-336-4363
Email: info@geneticalliance.org
www.geneticalliance.org |
|
Genetic and Rare Diseases (GARD) Information Center |
PO Box 8126
Gaithersburg, MD 20898-8126
Phone: 301-519-3194
Fax: 240-632-9164
888-205-2311
Email: gardinfo@nih.gov
www.genome.gov/ |
|
Genzyme- patient support page |
http://www.cerezyme.com/home/default.asp |
|
National Gaucher Foundation |
61 General Early Drive
Harpers Ferry, WV 25425
Phone: 301-816-1515
800-GAUCHER (428-2437)
Fax: 301-816-1516
Email: ngf@gaucherdisease.org
www.gaucherdisease.org |
|
National Organization for Rare Disorders (NORD) |
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: 203-744-0100
Fax: 203-798-2291
Email: orphan@raredisease.org www.rarediseases.org/ |
|
National Tay-Sachs and Allied Diseases Association |
2001 Beacon Street
Suite 204
Brighton, MA 02135
Phone: 617-277-4463
800-90-NTSAD (906-8723)
Fax: 617-277-0134
Email: info@ntsad.org
www.ntsad.org
|
|
Gaucher Registry |
https://www.lsdregistry.net/gaucherregistry/ |
