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LSD Treatment Centers – US


Alabama

Location

Address

University of Alabama Birmingham

619 19th St South
# Kb506
Birmingham, AL 35233
Tel: 205-934-6608
Fax: 205-975-7284
Gene P. Siegal, MD
C.W. Scott Jr., MD
Joyce Early, RN

University of Alabama Birmingham

1600 7th Ave South
Acc Bldg, Suite 516
Birmingham, AL 35233-1711
Tel: 205-934-4974
Fax: 205-934-1150
Alan K. Percy, Professor
Kristy Corey

University of Alabama Birmingham
Department of Genetics

720 20th Street South
Birmingham, AL 35294
Tel: 205-934-4983
Bruce Korf, MD
Maria Descartes, MD

USAMC

1504 Spring Hill Ave.
Room 5230
Mobile, AL 36640-0130
Tel: 251-405-5115
Fax: 251-405-5120
Yih-Ming Yang, MD
Jennifer Weaver

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Arkansas

Location

Address

Arkansas Children's Hospital

800 Marshall Street
Little Rock, AR 72202
Tel: 501-364-9236
Fax: 501-320-3634
Stephen Kahler, MD

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Arizona

Location

Address

Arizona Oncology Associates

6565 E. Carondelet Drive
Tucson, AZ 85710
Tel: 520-886-0206
Michael A. Boxer, MD

Pediatric Hematology/Oncology Associates

333 East Virginia Avenue
Phoenix, AZ 85004
Tel: 602-253-5993
Jesse Cohen, MD

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California

Location

Address

Cedars-Sinai Medical Center

Division of Medical Genetics
8700 Beverly Blvd.
Los Angeles, CA 90048
Tel: 310-423-6673
William Wilcox, PhD, MD

Children's Hospital of Central California

9300 Valley Children's Place
Madera, CA 93638
Tel: 559-353-6400
Susan C. Winter, MD

Kaiser Permanente Oakland Medical Center

280 W. MacArthur Blvd
Oakland, CA 94611
Tel: 510-752-6298
John Baker, MD

Tower Hematology Oncology

Comprehensive Gaucher Treatment Center
9090 Wilshire Blvd. Suite 200
Beverly Hills, CA 90211
Tel: 1-888-248-4456
Barry E Rosenbloom, MD, FACP
Cheryl Elzinga, Clinical Coordinator

USC School of Medicine, Division of Hematology

1441 Eastlake Avenue, MS 34
Los Angeles, CA 90033-0804
Tel: 323-865-3949
Howard A Liebman, MD
Laura Berman, RN

UCSF 

533 Parmassus
PO Box 0978
San Francisco, CA 94143
Tel: (800) 901-9997
Fax: 415-665-1314
Seymour Packman, MD
Cecilia Fairley, MS

University of California San Francisco

 

1466 4th Avenue
MRIV-Room 125
PO Box 0978
San Francisco, CA 94143
Tel: 800-901-9997
Greg Enns, MD
Vicki Sweet, NP

Children´s Hospital of Central California

9300 Valley Children's Place
Madera, CA 93638
Tel: 559-353-6440
Susan C Winter, MD

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Colorado

Location

Address

The Children's Hospital

Hematology/Oncology
1056 E. 19th Avenue
Denver, CO 80218
Tel: 303-861-6776
Daniel Ambruso, MD
Taru Hays, MD

The Children's Hospital, Clinical Genetics

1056 East 19th Avenue, B 115
Denver, CO 80218
Tel: 303-861-6942
Janet Thomas, MD

Colorado Lysosomal disorders
Adult Medical Genetics Program

12635 East Montview Blvd
Suite 100, Rm 124
Aurora, CA 80010
Tel: 303-724-1400

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Connecticut

Location

Address

University of Connecticut Health Center

Genetics Department, Lysosomal Disease Program 263 Farmington Avenue
Farmington, CT 06030
Tel: 860-523-6499
Fax: 860-523-6465
Robert M Greenstein, MD

Yale University School of Medicine

333 Cedar Street
FMP 408
PO Box 208064
New Haven, CT 06520-8019
Tel: 203-785-4649
Fax: 203-737-1384
Pramod K Mistry, Ph.D. MD, FRCP

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District Of Columbia

Location

Address

Children's National Medical Center

111 Michigan Avenue NW
Washington, DC 20010-2970
Tel: 202-884-2187
Fax: 202-884-2390
Kenneth N Rosenbaum, MD
Ann Carr
Cynthia J. Tifft, M.D., Ph.D.
Sandra Yang
Felicitas L Lacbawan, MD

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Florida

Location

Address

Children's Hospital at St. Joseph's Hospital

3001 West Dr. Martin Luther King Boulevard
Tampa, FL 33607
Tel: 813-554-8420
Fax: 813-554-8377

Cornerstone Cancer Center

3850 Tampa Road
Palm Harbor, FL 34684
Tel: 727-789-2595
Fax: 727-789-8891
Lori Gonzales, RN

Miami Children's Hospital

3200 SW 60th Court, Suite 205
Miami, FL 33155-4000
Tel: 305-663-8595
Fax: 305-669-6443
Mislen S Bauer, MD

Nemours Children's Clinic

83 West Columbia Street
Orlando, FL 32806
Tel: 407-650-7347
Fax: 407-650-7233
Vincent F. Giusti, MD
Maureen Sanders, RN
Jennifer Teicher, MS, GC

Nemours Children's Clinic

807 Children´s Way
Jacksonville, FL 32207
Tel: 904-390-3586
Fax: 904-390-3720
Pam Arn, MD
Heather Hansen, CGC

The University Research Foundation for Lysosomal Storage Disorders

8170 Royal Palm Boulevard
Coral Springs, FL 33065
Tel: 954-755-1904
Fax: 954-755-1910
Neal J Weinreb, MD, FACP

University of Florida

PO Box 100277
j277 jhmhc
Gainesville, FL 32610-0277
Tel: 352-392-3000
Fax: 352-392-8530
Richard Lottenberg, MD
Marc Zumberg, MD
Robert D. Marsh, MD
Jerilyn Stoner

University of Miami

Mailman Center D820
PO Box 016820
Miami, FL 33101
Debbie Barbouth, MD
Darcy Valasquez, RN
Karl Muench, MD

University of South Florida Regional Genetics Program

One Davis Boulevard
Tampa, FL 33606
Tel: 813-233-2727
Fax: 813-233-2734
Boris G Kousseff, MD
Sue Carbonell

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Georgia

Location

Address

Emory University School of Medicine

Lysosomal Storage Disease Center Department of Human Genetics
2165 N. Decatur Road
Decatur, GA 30033
Tel:  800-200-1524
Fax: 404-778-8562
Paul M. Fernhoff, MD
Dawn Jacob Laney, MS, CGC

MCG Children's Medical Center

1446 Harper Street
Augusta, GA 30912-3720
Tel: 706-721-2809
Fax: 706-721-9463
David Flannery, M.D.

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Illinois

Location

Address

Children's Memorial Hospital

2300 Children's Plaza
Chicago, IL 60614
Tel: 773-880-4462
Joel Charrow, MD

Hematology-Oncology Associates of Illinois

9711 Skokie Blvd.
Skokie, IL 60076
Tel: 847-568-9930

University of Chicago

5841 S. Maryland Avenue
Chicago, IL 60637
Tel:773-834-0555

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Iowa

Location

Address

University of Iowa Hospital & Clinics

Department of Pediatrics
Division of Hematology/Oncology
200 Hawkins Drive, 2530 JCP
Iowa City, IA 52242-1083
Tel: 319-356-3595
Thomas Loew, M.D.

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Kentucky

Location

Address

Norton Healthcare Pavilion

315 East Broadway, 5th Floor
Louisville, KY 40202
Tel: 502-629-2500
Fax: 502-629-2055
Terence J. Hadley, MD
Karen Tedesco, RN

University of Louisville

Weisskoff Child Evaluation Center
Department of Pediatrics
571 South Floyd Street, Suite 100
Louisville, KY 40202-3828
Tel: 502-852-5334
Fax: 502-852-0955
Joseph H Hersh, MD
Pam Farnsworth, MS, CGC
Kelly Jackson, MS, CGC

University of Louisville, School of Medicine

601 South Floyd Street, Suite 500
Louisville, KY 40402
Tel: 502-588-5229
Fax: 502-629-8752
Salvatore J. Bertolone, MD

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Louisiana

Location

Address

Tulane University Medical Center

1430 Tulane Avenue
New Orleans, LA 70112
Tel: 504-588-5101
Hans C Andersson, MD

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Maine

Location

Address

Maine Medical Center

887 Congress Street, Suite 320
Portland, ME 04102-3103
Tel: 207-828-8226
Fax: 207-773-6538
Wendy Smith, MD
Valerie Banks, M.Ed.

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Maryland

Location

Address

National Institutes of Health

49 Convent Drive
Bethesda, MD 20892
Tel: 301-496-0370
Fax: 301-402-6438
Raphael Schiffman, MD
Ellen Sidransky, MD
Roscoe Brady, MD
Camille Butler

Johns Hopkins University

600 North Wolf Street
Baltimore, MD 21287
Tel: 410-955-3071
Ada Hamosh, MD, Ph.D.
Amanda Bergner, MS

Sinai Hospital of Baltimore

2401 West Belvedere Avenue
Baltimore, MD 21215
Tel: 410-601-4710
Tel:: 410-601-6266
Steve Noga MD, PhD (Adult)
Joe Wiley, MD, PhD (Pediatrics)

University of Maryland

Pediatrics Genetics
737 W. Lombard Street, 1st Floor
Baltimore, MD 21201
Tel: 410-328-3335
Carole Green, MD
Mimi Blitzer, MD
Cerrie Atzinger, MS, CGC

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Massachusetts

Location

Address

Boston Children's Hospital

300 Longwood Avenue
Boston, MA 02115
Tel: 617-919-2139
Fax: 617-730-0934
Ellis Neufeld, MD, Ph.D.               

Cassie Ryan, CNP

Massachusetts General Hospital

Lysosomal Disorders Unit
Developmental Neurogenetics Program
Yawkey Center, Floor 6, Room 6B
32 Fruit Street
Boston, MA 02114
Tel: 617-726-5732
Katherine B. Sims, MD, Director
Marsha Browning, MD, MPH
Virginia Clarke, RN
Kellie Burke, Clinic Coordinator

Massachusetts General Hospital

Hematology/Oncology Unit
COX 640
Boston, MA 02114
Tel: 617-724-6193
Fax: 617-724-1137
David J. Kuter, MD
Lorrie Hudson

New England Medical Center

750 Washington Street
Boston, MA 02111
Tel: 617-636-4522
Fax: 617-636-0745
Mark Korson, MD                        
Margaret Klehm, NP
Maggie Orr, RN

Baystate Medical Center

Genetic Services
759 Chestnut Street
Springfield, MA 01107
Tel: 413-794-8890
Fax: 413-794-8166
Mary Alice Abbott, MD
Jolie Matheson, MS, CGC

Baystate Medical Center

Hematology / Oncology
3350 Main Street
Springfield, MA 01107
Tel: 413-794-9338
Fax: 413-794-3613
Richard Steingart, MD

University of Massachusetts Medical Center

Molecular Diagnostics Laboratory
303 Belmont Street
Worcester, MA 01604
Tel: 508-856-8134
Fax: 508-856-2433
Edward I, Ginns, MD, PhD, Director
Deborah Faryna, Center Coordinator

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Michigan

Location

Address

DNS Hematology/Oncology PC

28455 Haggerty Road, Suite 203
Novi, MI 48377
Tel: 248-324-4444

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Minnesota

Location

Address

Children's Hospital and Clinics

2525 Chicago Ave. South
Minneapolis, MN 55404
Tel: (612) 813-6100
Sara Gernbacher, RN

Fairview University Medical Center

420 Delaware Street, SE, Box 446
Minneapolis, MN 55455
Tel: 612-625-7422
Fax: 612-624-2682
Chester B. Whitley, Ph.D., MD

Mayo Clinic

200 1st Street SW
Rochester, MN 55905
Tel: 507-266-3317
Fax: 507-284-1067

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Missouri

Location

Address

Children´s Mercy Hospital

2401Gillham Road
Kansas City, MO 64108
Tel: 816-234-3290
Fax: 816-346-1378

University of Kansas Medical Center

Department of Metabolic Genetics
3901 Rainbow Boulevard
Kansas City, MO 66160
Tel: 913-588-6398

Washington University School of Medicine

Division of Genetics and Genomic Medicine
660 South Euclid Avenue, Box 8116
St. Louis, MO 63110
Tel: 314-454-6093
Linda Piersall, Geneticist
Alison J Whelan, MD

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Nebraska

Location

Address

University of Nebraska Medical Center

412 Saddle Creek
Omaha, NE 68198
Tel: 402-559-2550

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Nevada

Location

Address

Comprehensive Cancer Center of Nevada

3730 Southeastern Avenue
Las Vegas, NV 89109
Tel: 702-952-3400
Heather J Allen, MD

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New Hampshire

Location

Address

Dartmouth Mary Hitchcock Medical Center

One Medical Center Drive
Lebanon, NH 03756-0001
Tel: 603-650-7866
Fax: 603-650-8268
James J Filiano, MD, PhD
Lynn Wolf, NP

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New Jersey 

Location

Address

Hackensack University Medical Center

30 Prospect Avenue
Hackensack, NJ 07601
Tel: 201-996-5264
Robert Wallerstein, M.D.                           
Helio Pedro, M.D.

St. Barnabas Ambulatory Care Center

200 South Orange Avenue
Livingston, NJ 07039
Tel: 973-322-7020
Shari Fallet, DO

St. Peter's University Hospital

254 Easton Avenue
M.O.B. Room 4410
New Brunswick, NJ 08903-0591
Tel: 732-745-6659
Fax: 732-249-2687
Debra Day-Salvatore, MC
Nita Patel, R.N.C.

Holy Name Hospital

718 Teaneck Road
Teaneck, NJ 07666
Tel: 201-833-3000
Mark Levin, MD

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New Mexico

Location

Address

Health Sciences Center

Department of Pediatrics
Division of Hematology / Oncology
2211 Lomas Blvd NE
Albuquerque, NM 87131-5311
Tel: 505-272-6822

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New York

Location

Address

Albany Medical College

47 New Scotland Avenue, MC 52
Albany, NY 12208
Tel: 516-262-5995
Fax: 518-262-6805
Dr. Harry Dunn
Linda LaBier, RN

Helen Hayes Hospital

Rt. 9W
West Haverstraw, NY 10093
Tel: 845-786-4225
Fax: 845-947-3097

Mount Sinai Medical Center

Department of Human Genetics
5th Avenue and 100th Street
One Gustave L. Levy Place, Box 1497
New York, NY 10029-6574
Tel: 212-241-0915
Fax: 212-426-9065
R.J. Desnick, PhD, MD
Manisha Blalwani, MD
Coraleen Fosella, MA, ANP
Mary Keogh, MS, ANP
Marivic Fojas, BSN, RN

The Brookdale Hospital Medical Center

Linden Boulevard at Brookdale Plaza
Brooklyn, NY 11212-3198
Tel: 718-240-5244
Fax: 718/240-6147
Theodore W AvRuskin, MD

Hemophilia Center of Western New York

462 Grider Street
5th Floor
Buffalo, NY 14215
Tel: 716-896-2470
Fax: 716-898-5537
Zale P Bernstein, MD
Rosemary Holmburd

Maimonides Medical Center

6300 8th Avenue
Brooklyn, NY 11220                               

Philip Rubin, MD (Adults)
Tel: 718-765-2600
Fax: 718-765-2630                        
Ludovico Guarini, MD (Peds)
Tel: 718-283-6652
Fax: 718-635-7015

New York Medical College

19 Bradhurst Ave, Suite 1600
Hawthorne, NY 10595
Tel: 914-347-3010/3011
Fax: 914-347-4218
David F Kronn, MD
Valerie Marrero-Stein, RN

North Shore University Hospital

300 Community Drive
Manhasset, NY 11030
Tel: 516-562-8959
Fax: 516-562-8950

Long Island Jewish Medical Center

270-05 76th Avenue,
New Hyde Park, NY 11040
Tel: 718-470-8931
Fax: 718-470-0169
Dilip V Patel,MD
Pat Goepfert                                   
Marilyn, Office Manager

New York University School of Medicine

400 East 34th Street
RR220
New York, NY 10016
Tel: 212-263-8344
Fax: 212-263-8310
Gregory M Pastores, MD
Carol Fisher

University Hospital (SUNY)

750 East Adams Street
Syracure, NY 13210
Tel: 315-464-8200
Fax: 315-464-8206 

Women´s and Children´s Hospital of Buffalo

140 Hodge Avenue
Buffalo, NY 14222
Phone: 716-878-7530
Fax: 716-878-7405
Laura Tripi, MS, Genetic Counselor

Northshore – Long Island Jewish Health System

Division of Genetics
1554 Northern Blvd, Suite 204
Manhasset, NY 11030
Tel: 516-365-3996
Lakshmi Mehta, MD
Donna Bernstein

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North Carolina

Location

Address

Carolinas Medical Center - Pediatric Clinical Genetics

PO Box 32861
1000 Blythe Blvd.
Charlotte, NC 28232
Ann Salvino, MS, CGC

Duke Children's Hospital & Health Center

Trent Drive, Bell Building, Room 237
Durham, NC 27710
Tel: 919-684- 2036
Fax: 919-684-8944
Marie McDonald, MD
Y.T. Chen, MD
Priya S. Kishnani, MD
Joanne Mackey
John Kopki, MD

DUMC

Box 3028
Durham, NC 27710
Tel: 919-684-2036
Fax: 919-684-8944
Wendy Smith, MD

University of North Carolina - Genetics & Metabolism

Department of Pediatrics
CB#7487
Chapel Hill, NC 27599-7487            
Joe Muenzer, MD
Amy Fisher, MS, CGC

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Ohio

Location

Address

Children's Hospital Research Foundation

3333 Burnet Avenue
TCHRF 1042
Cincinnati, OH 45229-2899
Tel: 513-636-7290
Tel (secondary): 800-647-4805
Fax: 513-636-2261

Children´s Hospital

700 Children´s Drive
Columbus, OH 43205
Matthew Pastores, MS, GCG
Paula Dunaway, RN

Case Western Reserve University

1101 Cedar Ave.
Suite 510
Cleveland, OH 44106
Tel: 216-844-3936
Fax: 216-844-7497
Arthur B Zinn, MD, PhD

Cleveland Clinic Foundation

9500 Euclid Avenue
S35
Cleveland, OH 44195
Tel: 216-444-5517
Fax: 516-444-3577
Michael G. Levien, MD

Columbus Oncology Associates

810 Jasonway Avenue
Columbus, OH 43214
Tel: 614-442-3130
Fax: 614-442-3145
Scott C Blair, MD

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Oklahoma

Location

Address

Children's Hospital of Oklahoma

Department of Genetics
940 NE 13th St.
Room 2B 2418
Oklahoma City, OK 73104
Tel: 405-271-8685
Fax: 405-271-8697

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Oregon

Location

Address

Oregon Health Sciences University

3181 S.W. Sam Jackson Park Road
Portland, OR 97239
Tel: 503-494-7859
Robert Steiner, MD

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Pennsylvania 

Location

Address

Cowley Medical Associates

425 North 21ST Street
Camp Hill, PA 17011
Tel: 717-761-7400

Children's Hospital of Philadelphia

Section of Biochemical Genetics   
34th Street & Civic Center Blvd.           
9 South 20
Philadelphia, PA 19104
Tel: 215-590-3692
Fax: 215-590-4297
Paige Kaplan, MD
Joan Hart, LSD Coordinator

Children's Hospital of Pittsburgh

Department of Medical Genetics
3520 Fifth Avenue, Lower level
Pittsburgh, PA 15213
Tel: 800-334-7980
Fax: 412-692-7073                          
David N. Finegold, MD
Nadene Henderson, Genetic Counselor
Michele Graham, RN, Nurse Study Coordinator

Pennsylvania Oncology/Hematology Associates

230 West Washington Square
Philadelphia, PA 19106
Tel: 215-829-6088
Fax: 215-829-6104
Barb Matthews

University of Pennsylvania Health System

36th and Spruce Street
5 Maloney Bldg.
Philadelphia, PA 19104-4283

Reed Pyeritz, MD
Barbara Bernhardt, MS, CGC

University of Pittsburgh

Lysosomal Disorders Center
Children's Hospital of Pittsburgh
Division of Medical Genetics
3705 Fifth Avenue
Pittsburgh, PA 15213
Tel: 800-334-7980
Fax: 412-692-7073
David N. Finegold, MD
Nadene Henderson, Genetic Counselor
Michele Graham, RN, Nurse Study Coordinator

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Rhode Island

Location

Address

Miriam Hospital

164 Summit Avenue, 3rd Floor
Providence, RI 02906
Tel: 401-793-2920
Fax: 401-793-7603                      
Anthony Mega, MD
Lisa Colman, RN

Rhode Island Hospital

593 Eddy Street
Providence, RI 02903
Tel: 401-444-5171
Fax: 401-444-8845
Edwin Forman, MD
Donna Burke
Chanika Phornphutkul, MD
Sue Kortick, RN

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South Carolina

Location

Address

Greenwood Genetics

Two Doctors Drive
Greenville, SC 29605
Tel: 864-250-7944
Fax: 864-250-9582

Curtis Rogers, MS

MUSC – Medical Genetics Program

135 Rutledge Avenue, #395
Charleston, SC 29425
Tel: 843-876-1516
Fax: 843-876-1518                                  
G. Shashidhar Pai, MD

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Tennessee

Location

Address

Baptist Medical Center

2021 Church Street, Suite 600
Nashville, TN 37203
Tel: 615-340-4460
Fax: 615-340-4481
Ellen W Roback, MD

TC Thompson Children's Hospital

910 Blackford St.
Chattanooga, TN 37403
Tel: 423-778-6112
Fax: 423-778-6215
Jill Pouncy, MS
Cathy Stevens, MD

University of Tennessee Medical Center

1930 Aloca Hwy, Suite 435
Knoxville, TN 37902-6999
Tel: 865-544-9030
Fax: 865-544-6675
Carmen Lozzio, MD

University of Tennessee - MemphisTC Thompson Children's Hospital

711 Jefferson Avenue, Suite 523
Memphis, TN 38163
Tel: 901-448-6595
Fax: 901-448-4117
Jewel C Ward, MD, PhD

Vanderbilt University Medical Center

DD-2205 Medical Center North
Nashville, TN 37232-2578
Tel: 615-322-7601
Fax: 615-343-9951
Debra Freedenberg, MD
Melinda Cohen, MS
Vicki Hannig, MS

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Texas 

Location

Address

Baylor College of Medicine

One Baylor Plaza
Houston, TX 77030
Tel: 832-822-4261
Christine Eng, MD

Cook Children's Medical Center

901 Seventh Avenue
Fort Worth, TX 76104
Tel: 817-885-4006
W. Paul Bowman, MD

Santa Rosa Children's Hospital

333N. Santa Rosa Street
Basement Level
San Antonio, TX 78207
Tel: 210-562-5370
Fax: 210-562-5375

Scott & White Clinic & Hospital

2401 South 31st Street
Temple, TX 76508
Tel: 254-724-2708
David J Easley, MD

University of Texas Southwestern Medical Center at Dallas

2201 Inwood Road
Dallas, TX 75235
Tel: 214-648-1939
Eugene P Frenkel, MD

University of Texas Southwestern Medical Center

Children´s Medical Center
1935 Motor Street
Dallas, TX 75235
Tel: 214-648-8996

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Utah

Location

Address

University of Utah Medical Center

 

Primary Children's Medical Center
Division of Pediatric Med. Genetics
50 N. Medical Drive
Salt Lake City, UT 84132
Tel: 801-585-2457

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Vermont 

Location

Address

UHC Fletcher Allen Health Center

Burlington, VT 05401
Tel: 802-656-1988

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Virginia 

Location

Address

Children´s Hospital of Kings Daughters

601 Children´s Lane
Norfolk, VA 23507-1921
Tel: 757-668-9723
Fax: 757-668-9724
Virginia Proud, MD

University of Virginia

P.O. Box 800386
Charlottesville, VA 22908-0386
Tel: 434-924-2665 
                  
Charles E. Hess, MD
Thaddeus E Kelly, MD
Carolyn Ohle
Kimberly Dunsmore, MD

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Washington

Location

Address

University of Washington Center

1959 NE Pacific Street
Seattle, WA 98195
Tel: 206-616-7192
C. Ronald Scott, MD

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Wisconsin

Location

Address

Children´s Hospital of Wisconsin

9000 West Wisconsin Avenue
PO Box 1997
Milwakee, WI 53201-2178
Tel: 414-266-2979
Fax: 414-266-1616

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