POMPE

SUPPORT & RESOURCES

[Glycogen Storage Disease Type II | Acid Maltase Deficiency]

Organization	Address
Acid Maltase Deficiency Association, Inc. (AMDA)	P.O. Box 700248 San Antonio, TX 78270-0248 Phone: 210-494-6144 Fax: 210-490-7161 Email: tianrama@aol.com www.amda-pompe.org
Association for Glycogen Storage Disease	P.O. Box 896 Durant, IA 52747 Phone: 563-785-6038 Email: maryc@ausdus.org www.agsdus.org
Children Living with Inherited Metabolic Diseases (CLIMB)	Climb Building 176 Nantwich Road Crewe, CW2 6BG United Kingdom Phone: (+44) 0870 7700 326 Fax: (+44) 0870 7700 327 Email: steve@climb.org.uk www.climb.org.uk
Muscular Dystrophy Association - USA	National Headquarters 3300 E. Sunrise Drive Tucson, AZ 85718 Phone: 1-800-FIGHT-MD (344-4863) Email: mda@mdausa.org www.mdausa.org
National Tay-Sachs and Allied Diseases Association, Inc	2001 Beacon Street, Suite 204 Brighton, MA 02135 Phone: 617-277-4463 800-906-8723 Fax: 617-277-0134 Email: info@ntsad.org www.ntsad.org
Pompe Community Website	Genzyme Therapeutics 500 Kendall Street Cambridge, MA 02142 Phone: 617-768-9000 800-745-4447 www.pompe.com
Pompe Registry	http://www.lsdregistry.net/pomperegistry/